Axcela brings together thousands of scattered data sources to build and continuously update each Patient Organization (PO) profile.
What is in a PO profile?
When you open a PO profile in Axcela Bio, you'll find everything you need to know about the PO organized into clear, actionable sections. Below is a closer look at each section, so you know exactly what you’re seeing and how to use it.
News & Events
This helps you track what the PO is doing – from events they organize, to the news they publish to their members and stakeholders – all pulled directly from their own website. If a PO doesn’t publish updates publicly, this section won’t appear.
Social Media
Understand what type of reach a PO has across key social media platforms.
Financials
Financial information is available for POs in US, UK, and Canada. This includes key financial metrics, such as 'Program expense ratio' and 'Fundraising efficiency', that help you assess the strengths and suitability of each PO.
Payment disclosures
Indicates whether a Patient Organization (PO) has received payments from a life sciences company. This is based on publicly disclosed transfer-of-value reports from EFPIA member companies. You can filter for POs that have received payments from a specific company or any company.
Characteristics
We continuously review public information and activity for each Patient Organization (PO) and classify their work across five engagement areas. If a PO is active in any of these areas, it will be tagged accordingly:
Research
Uncover key highlights related to a POs involvement in research-related activities.
Patient registries: The PO runs its own registry or directs members to an external registry. Linked registries are shown where available.
Policy
Help you understand if a PO engages in policy or regulatory activities. Axcela Bio tracks detailed data from the US and EU, related to:
Review boards: The PO engages with regulators such as the FDA or EMA through advisory or review boards.
Lobbying: The PO has documented lobbying activities with the US Senate or the European Union. For US lobbying activities, you will see the specific bills that are being supported.
Awareness
Understand what types of engagements are focused on disease awareness and education.
Patient Support
Summary of the services offered to patients, such as peer support, caregiver support, or disease management education.
Clinical Services
Get highlights related to the clinical or care-related services a PO offers for members, including care coordination, reimbursement support, access to specialists, or operating clinical facilities.
Key People
An instant overview of the composition of the management team, board, and potential advisors.
Please note that availability can vary by PO type and region — so some profiles will be richer than others.